Where do patients and advocates find evidence?
This website, KnowBreastCancer.org, is a good place to keep up-to-date on the research looking at how breast cancer develops, how we might prevent it, and which treatments are most effective for which patients. Under the News & Research section, breast cancer studies are highlighted, summarized, and analyzed by breast cancer advocates. The Controversies section outlines important issues that the research community is undecided about, and provides an advocate perspective. In addition, links to the full text of journal articles and research papers referred to on this website are available through our partnership with Patient INFORM.
Other places to find evidence online include:
PubMed is a good source for individual studies. It is a free resource of the National Library of Medicine and is part of the National Institutes of Health. It has almost 20 million abstracts and citations describing biomedical, medical, preclinical, and healthcare systems research.
The Cochrane Collaboration is an international, independent, non-profit organization that publishes systematic reviews and meta-analyses on breast cancer research.
The Consumers United for Evidence-based Healthcare (CUE) is a national coalition of health and consumer advocacy organizations committed to empowering consumers to make the best use of evidence-based healthcare. CUE provides podcasts about evidence-based healthcare are on their website.
Understanding Evidence-based Healthcare: A Foundation for Action is an online course provided by the Cochrane Collaboration designed to help users understand the fundamentals of evidence-based healthcare concepts and skills. Registration is open and free of charge.
The Agency for Healthcare Research and Quality’s Effective Health Care Program publishes systematic reviews on the effectiveness and comparative effectiveness of breast cancer tests and treatments, as well as summaries of what is known and not known about them.
The Early Breast Cancer Trialists’ Collaborative Group (EBCTCG) publishes meta-analyses of centrally collected data from women in all randomized trials of the treatment of early breast cancer every five years.
MYTHS VS. TRUTHS
Brush up on your breast cancer myths and truths. Find out if you know more about breast cancer than the American public.
Speak up and out about breast cancer. Say, “I’ll Talk” and commit to a conversation about breast cancer with people you know and care about.