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Joy Simha

Joy Simha, Glen Rock, NJ

Meaningful breast cancer advocacy work changes the status quo for all women who are diagnosed with breast cancer today and in the future. I continue to do this work because it is the best way to actively fight this disease on behalf of all women.

When I was diagnosed with breast cancer in 1994 at the age of 26, I realized how little was known about breast cancer in young women. This realization inspired me to become an advocate and to work to change the status quo for young women affected by breast cancer. I am the co-founder of The Young Survival Coalition, a graduate of Project LEADĀ®, and a member of the board of directors of NBCC.

I sit on the Integration Panel (IP) of the Department of Defense Breast Cancer Research Program. The IP sets the vision for the research program and participates in Programmatic Review. I also represent NBCC on an Institute of Medicine (IOM) Roundtable which is working toward improving communications on Comparative Effectiveness Research (CER). In the past, I have done peer review for the California Breast Cancer Research Program (CBCRP), commented on Cochrane Reviews and helped scientists improve their research questions simply by talking to them about their work and asking them questions, which helps them to understand how to broaden their work and help more women.

My career is rooted in corporate communications and video production.Currently, I am a homemaker, and I have made a hobby out of writing children and adult nonfiction stories. I have a son and a daughter and I engage in this advocacy work in the hopes that they won’t have to worry about breast cancer one day.